Author: thingstomthinks

  • Understanding Restaurant Hours: When Is It Too Late?

    Understanding Restaurant Hours: When Is It Too Late?

    Every now and again you may hear people talking about an experience they have at a restaurant.

    Here is a sample scenario.

    The restaurant has posted hours of 10:00 AM to 10 PM. The restaurant hours are posted on their website, their Yelp page and on their front window.

    A person, couple or group walk in at 9:55 PM expecting to be served.

    Here is the typical battle.

    Some people think the person, couple or group are out of line expecting the restaurant to serve them so close to closing time.

    Some people think that since the restaurant is open, a person, couple, or group walking in a few minutes before they close is fine.

    Before taking sides, lets restate the obvious.

    According to the restaurant’s published information, they are open from 10 AM – 10 PM. The restaurant is open, preparing food and ready to accommodate customers.

    A person, couple or group walking into an open business has a legitimate expectation of being served.

    The arguments made by those who believe “customers are out of line for walking in so late ” make several points. First, the kitchen is already in the process of cleaning up. Second, the staff wants to get home when their shift is over. Third, how fresh can the food actually be just a few minutes before closing? Finally, just because a place is open, doesn’t mean that they are cooking.

    The argument being made by the “restaurant is open, a person or couple or group walking in at any time is fine” is simple:
    * If you say you’re open, you’re open.

    Of course a restaurant has the right to refuse any business. If they really do not want to serve people at 9:55 PM, they just need to inform the customers. They can simply say that the kitchen is closed. It is fair. It is understandable. It just does not make them right.

    The person that greets the customers first can simply say “since it’s so late there is just a very limited menu available.”  That limited menu could be true. However, because the hours do not state the limited menu with its later hours, it is not being advertised correctly.

    What’s the most reasonable way to handle these late night feasters?

    A simple change to the restaurant signage, an update to it’s website and it’s Yelp page.

    “Open at 10 AM – 10 PM. LAST SEATING AT 9:30PM”

    This simple change makes it clear. The restaurant opens its doors at 10 AM. It closes its doors at 10 PM. No customers will be seated after 9:30 PM.

    Believe it or not, I have been vilified for making that suggestion on other threads. No one can tell me why that is a bad idea. By simply adding LAST SEATING AT offers clear communication. It gives the staff a proper reason for rejecting the 9:55 PM customer. It also educates potential customers to avoid false expectations.

    Another alternative would be a sign that says:
    Open from 10 AM – 10 PM, Limited Menu after 9:00 PM.

    Like the previous suggestion, this wording sets accurate expectations for staff and customers alike.

    Until things change, a restaurant should expect to serve customers during their posted hours. If seating someone at 9:59PM is something you do, serve them.

    It would be nice for people not to walk into a restaurant 3 minutes before closing. Can you blame a hungry customer for wanting to give a business money during their posted hours of operation? Especially if you let them in, seat them and hand them menus?

    What do you think?

  • Rethinking Tipping: A Service-Based Approach

    Rethinking Tipping: A Service-Based Approach


    My first job out of school was as a tipped employee. I was a bellman at a hotel. I was paid a whopping $2.01 an hour, plus tips.

    Unlike servers or bartenders that are tipped based on menu prices, bellmen weren’t tipped based   on hotel room rates. If we were I would still be working as a bellman.

    Back then, in the early 1980’s a dollar a bag was the standard tip rate for a bellman. If a small cart was used, the expected tip was $3. If a large cart was used, $5 was the expected tip.

    Fewer hotels have bell staff these days, but I would imagine that the expected tip rate is about the same.  Why? It’s easy to calculate, the level of effort to move bags hasn’t changed and tipping isn’t a legal requirement.

    Don’t feel sorry for bellmen or doormen. The bigger hotels, especially in big cities, are easily pulling in $75,000 or more a year.  Oh, it doesn’t get declared for taxes, but they are doing fine. 

    I worked in a suburban hotel. I was making good money (not downtown money, but good money.  I also paid taxes on my tips.

    Back in the early 80’s a restaurant server expected a tip of 10% of the menu price, total bill. Over time that expectation became 15%, then 20%. For whatever reason some servers now expect 25%.

    You go to a hotel, a bellman carries 4 bags, you tip $4.  You go to the hotel restaurant. You tip 20% of some arbitrary menu price. This doesn’t reflect anything about the quantity or quality of work the server actually does.  

    Let’s use another industry and their prices as a comparison.

    You go to the local gas station. Monday gas is $3.33. Tuesday $3.18. Wednesday $3.05, and Thursday gas is $3.45.

    Pretend you live in New Jersey. You get all your gas on the Turnpike. Pretend that you have to tip 10% of the price per gallon.  That’s $0.33 Monday, $0.31 Tuesday, $0.30 Wednesday and $0.34 on Thursday per gallon.  

    Did the person pumping gas on Wednesday for a $0.30 per gallon tip work harder than he or she did on Thursday when tipped $0.34 per gallon? They did the exact same thing. They were tipped based on arbitrary prices. This had nothing to do with service or level of effort.  That makes NO sense.

    That is the world of restaurants today. A tipping system that makes no sense.

    Yet no one seemingly wants to end the tipping game.


    Why would the owners? They get to not pay their staff. Why would the servers? They get to change the standard of what is expected. The government is treated to lots of goodies from the lobbyists and we know politicians won’t walk away from freebies. The Unions should protect their members. Instead, unions are a business wanting to ensure employees can pay their dues. Consumers just want to eat food that hasn’t been spit in.  

    So who is going to propose a change? Me.

    Instead of ending tipping, let us make tipping a service driven earned income vs menu based given.

    For example:
    A party of 4 goes to a restaurant. The server goes to the table to take drink orders. They deliver the drinks. Then, they take appetizer orders and deliver the appetizers. They get dinner orders and deliver dinner. They then take coffee or dessert orders and deliver them. The server refills drinks twice and drops off the check.  That’s 13 trips to the table. Let pretend each interaction lasts an average of 1 minute.  AVERAGE.

    That’s 13 minutes worth of customer face time. Add in the trip time from kitchen or bar and back to the table, another 13 minutes.

    Each person pays $0. 20 cents a trip and $0.05 for the walk time to and from the kitchen.  Each person would pay $3.25 in tip, total table would tip $13.00.  The server would make $13 for roughly 26 minutes of work. Extrapolate that over an hour and a server would make just about $30 an hour.

    Most servers work at least 3 tables at a time. A server could earn $90 an hour based on their actual work. They would earn this money and menu prices would no longer matter.

    The harder working Denny’s server could make just as much money as Ruth’s Chris Server.

    Yes, smaller parties would pay less, larger parties would make more. Yes, the customer would need to track the number of visits to the table. The per table visit pay scale incentivizes the server to provide more attentive service. Since even under this process, paying the server just because they showed up would be optional.

     Servers would now have a real incentive to provide quality and quantity service. Quality and quantity, two things that aren’t required now.

    Restaurants that use food expediters would take part in the tip pool. Drink fillers would also participate. They would still work on the same systems and percentage scale they use now.

    Taxes would also be reported the same as always.

    If every person who does anything for you is asking for a tip, say no. Only tip if you feel they actually earned it. It’s time to shut down these ever-increasing number of hands that want to be tipped.

    Sorry hot dog concession stand at cashless stadiums. You don’t get tipped for not moving to hand me a hot dog.

    Sorry 7-11 clerk, you selling me a Big Gulp I poured myself doesn’t earn you a tip.

    Sorry cashier. You didn’t walk more than 2 feet to grab a pack of cigarettes or a box of condoms. You don’t get a tip either.

    There is an easy way to make the service industry better. The pay can be more stable. Tipping can also be quantified and measured.

    Don’t you think it’s time?

  • The Contradictory Nature of Winning and Losing in Sports

    The Contradictory Nature of Winning and Losing in Sports

    This is the time of year where winners and losers are both celebrated and scorned.

    Losers:
    Notre Dame Fighting Irish – College Football National Championship
    Buffalo Bills – NFL AFC Conference title game
    Washington – NFL NFC Conference title game

    Winners:
    Ohio State – College Football National Championship
    Kansas City Chiefs – NFL AFC title game
    Philadelphia Eagles – NGL NFC title game

    People love to give Notre Dame a lot of static since they have not won a national title since 1988 . The fact that they have won 13 national titles means nothing to those that hate Notre Dame. Since it has also been 36 years since their last title, even their fans are not a happy bunch. For winners, ND is labeled losers.

    (Fun Fact: Yale has the most college football national championships with 18. Alabama has 15, Princeton 15 and Notre Dame has 13).

    Winning matters it seems, but it all depends on when you win and what you consider winning.

    The Buffalo Bills made it to four consecutive Super Bowls; 1990 – 1993. No other team has had such a level of success. They can clearly call themselves the greatest team in the history of the AFC. Yet, they have no Super Bowl victories. A Josh Allen quarterbacked team is now 0-4 against KC in the playoffs. This level of success will never erase Wide Right. It also won’t erase losing 7 additional games to teams that were clearly just better than they were (Dallas twice, Washington, and KC).

    The fact that Buffalo won 93 games during their SB streak and being one of the top 4 teams during their run in with KC just doesn’t matter.

    With all their winning, Buffalo is not considered winners.

    Washington made their first NFC Championship game since 1991. Today they were considered winners.

    All Kansas City has done the past 5 years is win. Today they are labeled losers, cheaters and credit for their success is given to the refs and a rigged NFL. With all their winning, they are losers.

    ND lost one game after a 13-game winning streak and put $20 million dollars in their bank account. They are losers.
    Buffalo continues to be one of the best teams in the history of the AFC.
    They are losers.
    Kansas City wins and wins more.
    They are losers.
    Washington has been garbage for over 25 years. They lose a playoff game.
    They are winners.

    In a world where losing makes losers, when winning makes losers, and losing makes winners I do not think anyone really knows what a loser is.

    I will tell you what a loser is. Someone that does not think. Someone that does not show up. Someone that makes no effort. Someone that does not care.

    Approach life with the idea that you will do your best every day; you are winning.

    Do not listen to the noise. Pay no attention to those that criticize your efforts.

    Chances are that the people doing most of the complaining and finger pointing are the real losers.

    Win or lose, as long as you are trying, you are winning.

  • Trump’s First Day: A Groundbreaking Administration or a Failed Promise?

    Trump’s First Day: A Groundbreaking Administration or a Failed Promise?



    On Monday, January 20th, 2025, Donald Trump will be sworn in as the 47th President of the United States. The event takes place inside the warmth of the Capital Rotunda.

    If Trump does what he says he is going to do, his first day in office will be groundbreaking. The day promises to be the most successful first day of any President’s Administration.

    By 11:59 PM, January 20, 2025, Trump claims a massive deportation program will be instituted. People will start heading back “home.”
    “On Day One, I will launch the largest deportation program in American history to get the criminals out,” Trump said at his Madison Square Garden rally on Oct. 28

    Mind you, if he were to do this, it would be impossible to do in one day. Even if done over time, prices would spike. Supplies of foods, other goods, and services would diminish. The U.S. Economy, now the strongest in the world, would collapse.

    “On Day One of the Trump administration, I will terminate Kamala’s insane electric vehicle mandate, and we will end the new green scam once and for all. The green new scam will end,” Trump said at a rally in October.

    With Elon Musk telling Trump what do to, this will not happen. Musk will not allow Trump to crash his financial wealth and security. Plus, there are already hundreds of permits held for oil and natural resources. These permits are not being used; it helps keep costs up, supply in check. Trump could open the entire US for drilling. Wouldn’t matter. No one is going to be drilling unless it is to sell found resources on the open, international market. The benefit to the US consumer? None.

    Trump said at a rally in September, “The moment we win, we will rapidly review the cases of every political prisoner unjustly victimized by the Harris regime. And I will sign their pardons on Day One.”

    More than 1,500 people have been charged with federal crimes stemming from the attack on the Capitol. For the party of law and order”, allowing 1,500 convicts free does not seem to be a very just decision. Just because a Convict is President, does not mean every other convict should be walking the streets.

    Trump said he would end the War in Ukraine, AKA the Russian Invasion of Ukraine. Trump has no power or authority to end the invasion. He would just hand everything Russia wanted to his friend Putin. That is not happening because the rest of the world would not allow it.

    He is already starting to reverse the promises he made to his voters. Eggs will not be free. Groceries will not be cheaper. Gas prices are up based on the market knowing he is taking over. His own history shows he won’t close boarders. Mexico will fund nothing.

    Besides, how could he get all those goals accomplished? He is going to be busy waging war against Panama, Greenland, Canada, American Democracy, the Middle and Lower classes and the US Constitution?

    The people voted a clown to office. Now we get to welcome the entire circus.

  • California Wildfires: Politics vs. Aid in Crisis

    California Wildfires: Politics vs. Aid in Crisis


    Speaker of the House Mike Jackson said today that there should be conditions on aid to California. “I think there should be conditions on that aid.” Cal Fire said in an update Monday that a total of 40,300 acres have burned across multiple blazes. 12,000 homes, businesses, schools, and other structures have been lost. Over 150,000 have been evacuated. There are 24 confirmed dead.


    Palisades Fire (14 percent contained): The blaze has burned through more than 23,700 acres. It is in and around Pacific Palisades. The fire has killed at least eight people. Los Angeles Fire Department Chief Kristin Crowley said the fire has destroyed more than 5,300 structures since Tuesday. The fire is now spreading toward Brentwood, where the Getty Center is located, and is threatening to reach Interstate 405.

    Eaton Fire (33 percent contained): On the city’s east side, near Pasadena, the fire has killed at least 16 people. This makes it one of the deadliest fires in California’s history. The fire has burned through 14,117 acres. More than 7,000 structures have been damaged or destroyed by this fire, officials said.

    Hurst Fire (95 percent contained):In the north, near San Fernando, the fire has covered 799 acres.

    Is now the right time for the GOP to begin playing politics with natural disasters?

    Johnson wants to bribe California to get aid (Vote our way or don’t get paid.)

    Maggie Taylor Green claims that the Democrats control the weather.

    Elon Musk blames “Wokeness” for the wildfires.

    Trump is trashing the politicians and the firefighters.

    That folks is your America First GOP. They say anything. Know nothing. Do less. Trash America GOP.

    MAGA Trump target Canada. The country is now under US threats from the incoming President. Canada has been providing aid via water drops.

    MAGA hated Mexicans have been deployed by Mexico to LA to help fight fires.

    People from all over the US have been sending aid and money. Your MAGA American’s are sending hate, conspiracy theories and stupidity.

    When other natural disasters have hit the US both parties do not treat them equally. One party tends to address the needs of the citizens.

    The other party rather point fingers, spread lies and leverage people’s hardship for party gain.

    I do not care about whom you voted. I do not care where you live. I just know that when natural disasters strike we all want and need the same thing. A government for the people.

    The MAGA GOP has lost sight of what is important to ALL of its citizens.

    Fire, Flood, Wind does not check the voting of records of the people that live where they hit. They just hit.

    Our government should not check either. They should just help.



  • Examining the January 6 Insurrection: A Threat to Democracy

    Examining the January 6 Insurrection: A Threat to Democracy


    A sitting President lost his reelection bid by 74 Electoral College Votes.

    The same sitting President lost his reelection by 7,059,526 popular votes.

    The same sitting President, his party and his supporters lost over 62 court cases. These cases claimed voter fraud or election tampering without evidence.

    With no other recourse to remain in power, the same sitting President rallied his cult-like following to the nation’s capital.

    The same sitting President worked this crowd into a frenzy. He promised to lead them on a march on the Capital building. Instead, the President went back to the White House. His mob marched onto the Capital.

    Yet this no now angry, frenzied mob, high on lies and intoxicated with hate, stormed the Capital. Police were brutalized, beaten, and killed. Building windows and doors broken. Entry was forced, the halls of the Capital, its offices trashed. Elected representatives from all parties were running, hiding, and pleading for their lives.

    All the while, the same sitting President snuck away from his mob. He wanted to keep his hand clean. Instead, he chose to sit in a room and watch the violence unfold on TV.

    And for hours, he ignored the calls and pleas to end the madness. He gleefully did nothing.

    Why? Why did thousands of Americans rally in DC? Why did these people try to overthrow the government? It was a very misguided attempt to prevent the certification of the election results.

    These people wanted their guy to remain in charge. Their guy wanted to remain out of jail.

    Not since the Civil War had such a violent effort to overthrow the US Government had taken place. Never before was the leader of an insurrection the President of the United States.

    Since the failed coup attempt Democracy has been slowly dying. The same sitting President, never accepted defeat. He led the clamor that he was robbed, that he was a victim. His party maintained that if “They” could “come after” him “They” could “come after you”.

    Truth as we all know it. If you break the law through rape, sexual assault, fraud, or extortion, the justice system could come after you. Even if you cheat on your taxes, you could still face consequences.

    Why? Because you would be a criminal.

    Obey the law and no one will “come after you”.

    Yet thousands of people decided it was in their best interest to break the law to keep their guy free.

    In the end, their guy was found guilty of 34 felonies. He was labeled a criminal rapist. He surrounded himself with the most unqualified people the world has to offer. He lined his pockets with the support of many of the richest billionaires in the US and the world. He openly lies about his future actions. He lays false claims about his capabilities. He denies guilt for past actions.

    All the while many of the people that attended his rally and rode on the Capital have been jailed. Only they have been held accountable for his call to action while their guy roams free.

    The same sitting President is now the same sitting President elect.

    He promises to make life harder on the middle and lower classes. He alienates and antagonizes our allies. He plays into the hands of the most despicable world leaders. He proves to be exactly what the majority of voters always knew he was – an unqualified man child. He lacks even the simplest understanding of taxes, tariffs, economics, US and World history, science, the environment, and globalization.


    The same sitting President elect has been fortunate that the rich see him as a puppet. They manipulate him to grow their own riches and power. He enables them to take from the poor and give to themselves.

    The same sitting President elect has been even more fortunate. The worst among us are easily deceived. The dumbest of the dumb believe what he sells. The weakest of the weak cannot resist his allure. The lamest of the lame follow him blindly. They buy not just gold tennis shoes and autographed China manufactured bibles. They continue to sell their souls, their futures and their own freedom. They sell out America just so their guy can stay out of jail.

    Why? Just so they can help end Democracy. So they destroy the America that has been in development for hundreds of years. So that a professional con-man and life time criminal can steal from them, make their life harder.

    January 6, 2021, was the first day that American Democracy was put on life support.

    Now the world watches to see if the real America can perform CPR for the next four years.

    The ability of the majority to outlast the minority is the only hope America has left.

    We and the world are on notice.


  • Effective New Year Resolutions: How to Succeed

    Effective New Year Resolutions: How to Succeed

    From Oxford Languages
    Resolution
    Noun
    1. a firm decision to do or not do something
    2. the quality of being determined or resolute

    From Thingstomthinks
    Resolution
    Noun
    1. a the action or inaction someone takes or doesn’t take once every December 31st
    2. the unrealistic promises made with high hopes. These promises are often broken soon after every January 1.

    Most every day we all see something in our lives we want to change. Most every day we vow to make those changes. Most every day nothing changes.

    Yet every year, usually December 31 everyone will make a resolution to do something. Exercise, lose weight, eat less, read more, spend less, save more, go out more often, drink less.

    The intentions of these resolutions are fine. Self-improvement, better health, a happier life are all good goals.

    Yet these New Year Resolutions almost are always broken by noon January 1. Why? January 1 is a holiday so people are home eating, drinking , nursing headaches and many gyms are closed. Mainly because we just didn’t feel like starting.

    We can all keep resolutions. Just not New Years Eve induced resolutions. You can not make changes just because your free United Way Wall Calendar rolls from one year to the next.

    For a resolution to be a powerful tool, a commitment that you can live up to. You must be of sound mind, body and spirit. Nothing we aren’t ready for is anything that we will embrace, no matter how well intended.

    If you spent time thinking about changes you want in your life, great. I encourage and support everyone who has a dream for a better, fitter, healthier life.

    Make a plan. Set a goal. Decide on the actions you are willing to take. Determine a schedule you can live with.

    Most importantly, accept that you may miss your goal, may have set backs. Your journey will have ups and down, highs and lows. It’s okay.

    The only resolution you have to make is one you can live with. Something for you, set by you and embraced for all the right reasons.

    It’s 12:03 and I hear the sound of half-hearted resolutions breaking all over.

    I won’t start mine until January 2. I have potato chips to eat!!

    Happy New Year.




  • Ted Mosby’s Love Story: Insights from HIMYM

    Ted Mosby’s Love Story: Insights from HIMYM

    In 2005 a witty little sitcom called “How I Met Your Mother” began its 9-season run.

    The premise of the show was simple. Ted Mosby, using flashbacks, was telling his two teenage children how he met their mother.

    During the nice year run, Ted and Robin had a will they will, won’t they relationship. Throughout the 9 years, Ted and Robin did and they did not.

    The real focus of the show was sharing one man’s journey. That journey? Ted finding the woman that would become the mother of his children.

    Each episode was focused on Ted, Robin, Barney, Marshall, and Lilly. Ted shared stories about the shenanigans he and his friends experienced. He talked about the trials and tribulations they endured, all in the name of love.

    The last season focused entirely on Ted meeting his soon-to-be wife and getting to the altar.

    The very last episode is what has caused much strife in the HIMYM universe.

    SPOLIER ALERT!!! If you do not want to know what happens, stop reading.

    Ted marries The Mother. The couple have two kids. The mother dies. Ted asks Robin on a date.

    The outrage!!! After 9 years of will they or won’t they. After 9 years of “who is the mom”. Ted FINALLY meets the Mother, she dies, and he is back with will they or won’t they Robin.

    Many people felt betrayed by the show. People were angry that Mother was only in a handful of episodes; angrier yet that she died. The audience exclaimed, “What a waste of 9 seasons!” They were frustrated to end up with the woman Ted met in episode 1.

    I was not one of the small-minded angry mob. I knew and stand by the fact that the name of the show was “How I Met Your Mother”.

    The show was not called “My Long, Happy Life With Your Mother”. The show was not called “Let Me Tell You About The Ups and Downs of My Relationship With Robin”.

    The show was called “How I Met You Mother”.

    That is the exact story Ted told to his kids.
    That is the exact story Ted told the audience.

    Do you need to be mad at a TV show? Be mad at “Lost”, they were all found.

  • The True Meaning of Christmas in A Charlie Brown Christmas

    The True Meaning of Christmas in A Charlie Brown Christmas

    Retrieved from A Charlie Brown Christmas:

    "I guess you were right, Linus. I shouldn't have picked this little tree," said Charlie Brown. "Everything I do turns into a disaster. I guess I don't really know what Christmas is all about. Isn't there anyone who knows what Christmas is all about?"

    "Sure, Charlie Brown, I can tell you what Christmas is all about," said Linus. [Linus walks to center stage.]

    "Lights, please."

    And there were in the same country shepherds abiding
    in the field, keeping watch over their flock by night.

    And, lo, the angel of the Lord came upon them,
    and the glory of the Lord shone round about them:
    and they were sore afraid.

    And the angel said unto them, Fear not: for, behold,
    I bring you good tidings of great joy,
    which shall be to all people.

    For unto you is born this day in the city of David a Saviour,
    which is Christ the Lord.

    And this shall be a sign unto you; Ye shall find the babe wrapped in swaddling clothes, lying in a manger.

    And suddenly there was with the angel a multitude of the heavenly host praising God, and saying, Glory to God in the highest, and on earth peace,
    good will toward men.


    --Book 42, Luke (002:08-14)
    The Bible, King James Version

    [Linus picks up his blanket and shuffles off-stage.]

    You don't need to be religious or Christian to embrace Peace and Good will toward men.

    May this holiday season,no matter how you celebrate, bring you peace and good will.

    © 2024 AmericanLiterature.com

  • Remembering Emily: A Tribute to Life and Rett Syndrome Awareness

    Remembering Emily: A Tribute to Life and Rett Syndrome Awareness

    It is with a heavy heart that I write the first blog of the week.

    Yesterday, my family suffered a great loss. My cousin Emily passed away due to complications linked to Rett Syndrome. Emily was 20 years young.

    I only had the opportunity to meet Emily in person once. She was a beautiful, healthy baby. She was diagnosed with Rett Syndrome sometime around her first birthday.

    With family being spread out across the globe we stay connected via social media. Emily’s loving mother, father and brother did a wonderful job of sharing Emily with the rest of the world. . Emily’s loving mother, father and brother did a wonderful job of sharing Emily with the rest of the world. We were able to watch her grow and blossom into a beautiful young woman.

    What is Rett Syndrome?

    Rett Syndrome is an X-linked, severe neurodevelopmental disorder which almost exclusively affects girls. It is characterized by developmental delays, severe problems with learning, communication, and motor functions. In later stages, children with Rett syndrome develop breathing abnormalities, seizures, scoliosis, and sleep disturbances.

    Frequency of Rett Syndrome is ~1:8500-1:10000 live births worldwide and usually manifests at 6-8 months of age. The cause of Rett syndrome is loss-of-function mutations in the X-linked methyl-CpG binding protein (MeCP2). These mutations result in a protein that acts as a transcription regulator. This protein is highly expressed in neurons.

    In >99% of people with this disease, there is no history of the disorder in their family. Many of these cases result from de novo mutations in the MeCP2 gene.

    Currently, there are no effective treatments for Rett Syndrome and treatments are only aimed toward alleviating symptoms of the disease.

    Rett Syndrome impacts mostly girls. Girls have two X chromosomes, one with the disrupted gene and one with the healthy gene. Having some healthy MeCP2 protein allows girls to survive. However, it also results in severe impairment that comes with Rett.

    Emily stopped developing when she was about one year old. Her physical growth did not stop. I do not want to try to explain what difficulties Emily had, what she could or could not do. If you have been around a one-year-old, you can imagine the challenges Emily and her family faced.

    I also lack the insight to explain the numerous surgeries Emily underwent. She faced countless procedures. There were hundreds, if not thousands, of nights Emily spent in the hospital.

    Emily was blessed by having a mother, father, brother, aunts, uncles, cousins, and grandparents near by. They made sure Emily received the 24 x 7 care she required. They also ensured she felt nothing but love.

    Over time, a dedicated group of doctors, nurses, and professional caretakers formed. Teachers and support staff also joined them. They provided the care and nurturing Emily needed. This support went beyond the love Emily’s family was able to provide.

    Rett Syndrome is an orphan disease. An orphan disease lacks attention, resources, and research because it is so rare. Lack of funds creates challenges in discovering cures. It also makes it difficult to improve treatments. Moreover, it hampers efforts to better aid families with the care their family needs.

    I do not want to diminish what is being done. Good people are doing remarkable things. It is just not enough.

    During this holiday season, sit with your family. Remember how blessed you are to enjoy each other’s company. Share health and happiness.

    Then if you can, please consider donating to the International Rett Syndrome Foundation.

    This holiday season your family will be watched over by a new and incredibly special angel. Emily.

    http://www.rettsyndrome.org